current authorCongenital Hyperinsulinism Internationaloriginal authorBeth Helmstetter

Healthcare organization

Congenital Hyperinsulinism International

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Congenital Hyperinsulinism International

CHI was founded in May, 2005, by concerned parents of children with HI who had met in the early years of the social media revolution through a Yahoo! Groups community (the “hyperins” message board), launched in May, 1999. CHI founders wanted to make sure there was an organization that could advocate on behalf of each child brought in to the world with the disorder, irrespective of where the child was born and the family’s resources. CHI founders wanted to create opportunities for HI families to come together and learn from leading world experts and each other. CHI founders wanted to help support research so that children born with HI in the future would never die or suffer from brain damage. CHI founders wanted to make sure that when a baby presents with the disorder, medical personnel would quickly make a correct diagnosis so that the baby does not suffer from needless brain damage. CHI founders understood that to be successful, parents would have to work side by side with medical specialists to reach these goals, and so they formed the CHI Scientific Advisory Group (SAG). The SAG is comprised of the leading world specialists treating and researching HI. CHI founders believe that all HI families around the globe are part of the CHI Family.